News and Updates
Stay up to date with news about primary immunodeficiency disorders and the ImmUnity Canada community.
Board member visit to Parliament
Our Board Member, Andrea Fernandez Abdul-Rahim, had the privilege of being invited to the House of Commons by the Honorable Mr. Matt Jeneroux. During her visit, Andrea discussed the importance of access to gene therapy for her...
PI: A cause of serious disability
Primary immunodeficiencies (or PIDs) are chronic and rare diseases caused by the absence or malfunctioning of components of the immune system. Most PIDs cannot be cured and require long-term treatment and follow-up. These...
Do you have APDS?- New research opportunity.
Do you have Activated Phosphoinositide 3-kinase Delta Syndrome (APDS) or do you care for someone with APDS? Individuals with APDS and their caregivers are being invited to take part in a research study in Canada that...
Emergency departments in Rural Canada need your help
We are posting this for our rural and remote patients and families in support of our friends at the Society of Rural Physicians Canada (SRPC), and the communities that they care about. SRPC is asking Canadians that are concerned...
ImmUnity Canada COVID-19 Update – January 19, 2023
ImmUnity Canada has received many inquiries about COVID-19, most of which relate to patient medical care, provincial guidelines, or vaccine access. For specific medical inquiries, please contact your healthcare provider or...
Newborn Screening Report – released today!
(U.S Air Force photo/Staff Sgt Eric T. Sheler) ImmUnity Canada and the Network for Rare Blood Disorders Organization (NRBDO) have today released a new report, Timing is Everything: Toward a national newborn screening...
Quebec Adds SCID to Newborn Screening
Quebec has joined the other provinces and territories by adding SCID to its list of conditions screened at birth. Starting in the spring 2023, all babies born in Quebec will be screened for this life threatening primary...
In the news
Our Executive Director, Whitney Ayoub Goulstone, and our ImmUnity Canada board member, Kim Hanson, were recently featured in an article where patients with Primary Immunodeficiency are still facing a death threat against COVID....