ImmUnity Canada and the Network for Rare Blood Disorders Organization (NRBDO) have today released a new report, Timing is Everything: Toward a national newborn screening program for rare disorders.
We have worked closely with provincial newborn screening program providers and with Health Canada to make recommendations for the creation of a national newborn screening program as part of the Drugs for Rare Diseases Strategy.
The report can be found at www.nrbdo.ca/nbs.
ImmUnity Canada is a national charity with five provincial chapters across the country.
We empower Canadians impacted by immunodeficiency disorders to live well through education, support, advocacy, community-building, and research.
Read the latest news and updates from ImmUnity Canada.
Meet Anna, one of our new membership volunteers! What motivated you to volunteer? I retired May 2023 and finally had time to volunteer and find a non profit...
World Primary Immunodeficiency Week (WPIW) is a global campaign held every year between April 22-29, aimed at raising awareness for primary immunodeficiencies...
In Canada, 14,000 children under the age of 15 die each year from a rare disease. With more than 7,000 known rare diseases, it is essential for researchers...