ImmUnity Canada and the Network for Rare Blood Disorders Organization (NRBDO) have today released a new report, Timing is Everything: Toward a national newborn screening program for rare disorders.
We have worked closely with provincial newborn screening program providers and with Health Canada to make recommendations for the creation of a national newborn screening program as part of the Drugs for Rare Diseases Strategy.
The report can be found at www.nrbdo.ca/nbs.
ImmUnity Canada is a national charity with five provincial chapters across the country.
We empower Canadians impacted by immunodeficiency disorders to live well through education, support, advocacy, community-building, and research.
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