https://www.youtube.com/embed/xtPuHyplv_I Transcript Zeynep: Hi, my name is Zeynep. I am an immunology patient. I go to the hospital once a month. I was always sick when I was a baby. I had three ear surgeries. I felt scared and...
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Wendy’s Story – World PI Week
How has primary immunodeficiency impacted your daily life? From the time I was born until recent times, I had no knowledge that I had PID and had a limited understanding of viruses and infections, causing me to self-medicate...
Josiah’s Story – World PI Week
https://youtube.com/embed/poxTPcOcuMg Transcript My name is Josiah Friesen and I live in Hamilton, Ontario. I was recently diagnosed with a primary immunodeficiency called polysaccharide antibody deficiency. While this is a more...
Circles on Circles: Maureen’s Story
Can you tell us, in one sentence, how primary immunodeficiency has impacted your daily life? I am a university professor, writer, and mother and unknowingly, sneakily, and for many years, PI circled me closer and closer, taking...
New Pan-Canadian Recommendations for Newborn Screening in Canada
In support of the National Strategy for Drugs for Rare Diseases, the Canadian Drug Agency's (CDA) Newborn Screening Advisory Panel, which includes ImmUnity Canada Executive Director Whitney Goulstone, has developed new guidance...
Welcome Sanjay & Stephanie to our Board of Directors
We're excited to introduce the two new members of the ImmUnity Canada Board of Directors. Stephanie and Sanjay both have personal connection to the PI commUnity, and are incredibly talented professionals who we look forward to...
New Joint Stakeholder Statement on Plasma-Derived Medicinal Products
The Platform of Plasma Users (PLUS) has released a statement regarding Plasma-Derived Medical Products (PDMPs) based on discussion at this year's Stakeholder Consensus Conference. This statement highlights the importance of safe...
Edmonton “Bubble Boy”‘s DNA Music goes Global
In a project lead by Dr. Kantipuly, musically produced by Dr. Frishkopf, lyrics written by ImmUnity Canada Board Memeber Andrea, and sang by Dr. Olga Zaitseva-Herz at the University of Alberta, Andrea's son Jakob, had his...
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Speaker Spotlight – Transforming DNA into Music: Where Science Meets Art
Discover a unique fusion of science and creativity in this interactive session on translating DNA sequences into music. Learn how genetic information can be...
Speaker Spotlight – Research 101: Setting the Stage
Curious about research? Want to know more about the different types and what is involved? This introductory session breaks down the basics of research in a...
Community Comes Together for Zoey and Misha: Stem Cell Swab Drive Raises Awareness and Hope
On June 10th, 2025, a heartfelt collaboration between SickKids Immunology Clinical Nurse Specialist Jessica Willett Pachul, Canadian Blood Services, and Peel...
