Uniting around immunodeficiency
ImmUnity Canada is a not-for-profit charitable organization with over 25 years experience specializing in improving the diagnosis, treatment and quality of life of patients living with immunodeficiency in Canada.
We work hard on your behalf to address national and provincial issues at the policy-level, such as pushing for a national newborn screening program, increasing Canada’s plasma supply and access to plasma products. We ensure that the patient voice is at the heart of discussions impacting your access to comprehensive healthcare.
With an estimated 50,000 individuals living with primary immunodeficiency alone in Canada, and currently 70% of those yet to be diagnosed, we specialize in education for the patient and health professionals. We also understand the importance of providing emotional and social support to members, connecting patients with one another through our ImmUnity CommUnity.
By becoming a member, you help strengthen our ability to empower people with primary immunodeficiency disorders to live well.
Who Are Our Members?
- Adult patients with a suspected or diagnosed immunodeficiency
- Parents and caregivers to patients with a suspected or diagnosed immunodeficiency
- Healthcare professionals
- Volunteers and supporters of the immunodeficiency community in Canada
- Other patient organizations, policy-makers, industry partners, & stakeholders
“I have a greater sense of purpose being connected with others after my diagnosis.”
For Patients & Families
Welcome to YOUR ImmUnity CommUnity. No matter where you are from in Canada, join thousands of others to advocate for the highest standards of diagnosis, care and treatment of immunodeficiency.
Benefits include:
- Important updates, including our weekly What’s Happening e-newsletter
- Support resources on how to live well and navigate life with immunodeficiency
- CommUnity Connect Groups and other opportunities to connect
- Educational webinars, videos, and other events
- AGM voting rights (for patients and families/caregivers only)
- Opportunities to participate in activism and research to improve the lives of those with immunodeficiency
- Entrance to a private, closed Facebook Group
- Access to our Financial Assistance Program
- Volunteer opportunities and supports
- & more!
For Healthcare Professionals
ImmUnity Canada offers membership for the hundreds of healthcare professionals who work with immunodeficiency patients and their families across Canada. This includes physicians, nurses, researchers and health policymakers.
Benefits include:
- Updates about important news, programs, and services for your patients and their families
- Access to educational materials for staff and patients, including treatment options and guides
- Access to our network of medical health professionals, researchers and medical experts across Canada
- Opportunities to hear from and engage with our Medical Science Advisory Committee and Nurse Advisory Committee
- Inclusion of your research in our patient e-newsletter and on social media, including for participant recruitment
- Volunteer opportunities to be involved in presenting and moderating in our national, regional and online events to reach more patients and families.
- &more!
Submit your membership request
By submitting your membership request you agree to recieve email communication, such as newsletters, from ImmUnity Canada.