How has primary immunodeficiency impacted your daily life, including work, school, or social activities? PI makes me terribly aware of the numbers of other people, their health status and whether they have scent on the moment I...
Patient Stories
Read news, updates, stories and more from the ImmUnity Canada community.
Wendy’s Story – World PI Week
How has primary immunodeficiency impacted your daily life? From the time I was born until recent times, I had no knowledge that I had PID and had a limited understanding of viruses and infections, causing me to self-medicate...
Josiah’s Story – World PI Week
https://youtube.com/embed/poxTPcOcuMg Transcript My name is Josiah Friesen and I live in Hamilton, Ontario. I was recently diagnosed with a primary immunodeficiency called polysaccharide antibody deficiency. While this is a more...
Circles on Circles: Maureen’s Story
Can you tell us, in one sentence, how primary immunodeficiency has impacted your daily life? I am a university professor, writer, and mother and unknowingly, sneakily, and for many years, PI circled me closer and closer, taking...
Bryan Hemingway – CVID patient and extreme unicyclist
My name is Bryan and I was born with Common Variable Immunodeficiency (CVID), specifically Hypogammaglobulinemia (I still have trouble saying that one). I am not going to talk about what that means in general (but it is worth...
The Drayton Family
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Meet Romika
Romika is a second year medical student at the University of Ottawa, with a strong background in facilitation, peer mentorship, and community health. Over...
Speaker Spotlight – Updates in Research
In this session, Dr Nicola Wright will give an overview of her groundbreaking gene therapy trial for CD3 SCID and the potential implications for this...
Speaker Spotlight – New Avenues in Diagnostics & Treatments: The Use of AI
Discover the latest breakthroughs in diagnosing and treating primary immunodeficiency. This session will highlight cutting-edge technologies, innovative...
