My name is Bryan and I was born with Common Variable Immunodeficiency (CVID), specifically Hypogammaglobulinemia (I still have trouble saying that one). I am not going to talk about what that means in general (but it is worth...
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Volunteer Spotlight: Anna
Meet Anna, one of our new membership volunteers! What motivated you to volunteer? I retired May 2023 and finally had time to volunteer and find a non profit...
Take Action for World PI Week
World Primary Immunodeficiency Week (WPIW) is a global campaign held every year between April 22-29, aimed at raising awareness for primary immunodeficiencies...
Government of Canada invests $20 million to improve health outcomes of children living with rare diseases
In Canada, 14,000 children under the age of 15 die each year from a rare disease. With more than 7,000 known rare diseases, it is essential for researchers...