Edmonton “Bubble Boy”‘s DNA Music goes Global

February 20, 2025

In a project lead by Dr. Kantipuly, musically produced by Dr. Frishkopf, lyrics written by ImmUnity Canada Board Memeber Andrea, and sang by Dr. Olga Zaitseva-Herz at the University of Alberta, Andrea’s son Jakob, had his genetic sequence transformed into music. The team hopes this project will help raise awareness of ADA-SCID, a type of immunodeficiency that meant Jakob was born with nearly no immune system.

You may have heard Andrea talk about this project with Dr. Frishkopf and Dr. Kantipuly on Episodes 4 & 5 of our Slice of PI Podcast. Their project has since made it to City News Edmonton & Global News, spreading awareness of PI across Canada and beyond!

Listen to the Podcast Episodes here, or on your podcast app of choice under ‘Slice of PI’

Season 3 of Slice of PI is generously supported by our friends at Pharming®

and check out the tv & radio segments and articles by clicking the logos below!

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ImmUnity Canada is a national charity with five provincial chapters across the country.

We empower Canadians impacted by immunodeficiency disorders to live well through education, support, advocacy, community-building, and research.

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